Ataxia Ireland was forced to close earlier this year after a damning Charity Regulatory Authority report and its functions were fully transferred to AFI.
**The investigation, published in July 2017, discovered that two founding trustees at the charity, Clare and Tim Creedon, were wrongly paid €84,009.
The payments broke Revenue Commissioner rules, which state charity trustees cannot be paid. **It was also learned that its generous funding from the HSE quadrupled over the years. Ataxia Ireland was given €102,383 by the HSE last year - up from €27,934 in 1999.
The charity was reported to have weak internal financial controls and the Creedons’ daughter Barbara Flynn, the charity’s chief executive, had a pension contribution of €38,500 which was paid from funds rather than from her salary.
In addition to the annual HSE funding, Ataxia Ireland also received yearly lottery payments through the Department of Justice - reaching a high of €109,212 in 2011.
“Now we’re starting totally from scratch financially,” Mr Young said.
"And we’ve been contacting as many people as we can about our new charity. It’s a small community because it’s such a rare disability.
“I think people’s confidence will be restored in charities when an organisation does something like what we’re doing now,” he continued.
"It’s the people who were affected that are trying to change things here.
“A lot of members were shocked and surprised at the time of the [Charity Regulatory Authority] report, and really the organisation had been around for some time. Now we’re approaching things a different way.”
Mr Young said the board has created a number of cost-effective measures for their new charity.
**"We designed our own logo, built our own website, we’re operating without the use of an office for as long as possible.
"We rent a boardroom from another charity for our monthly management meetings**.